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On Rare

On Rare

BridgeBio Pharma
Veröffentlicht: 2022-06-30
© Copyright 2022 All rights reserved.
On Rare - QR Code
Gratis0%
7 Folgen
Audio
Anhören auf Apple Podcasts
Gratis0%
7 Folgen
Audio
Anhören auf Apple Podcasts
Veröffentlicht: 2022-06-30
© Copyright 2022 All rights reserved.
Aktuelle Folge
I’m a salt waster, 1 in 20,000. You don’t let it run you, you run it.

I’m a salt waster, 1 in 20,000. You don’t let it run you, you run it.

In this month’s episode of On Rare, David Rintell speaks with Erica, who is living with congenital adrenal hyperplasia (CAH). Erica describes what it has been like to live with CAH and how she decided to manage her condition and live life on her own t
Länge: 30:11
Abspielen
In this month’s episode of On Rare, David Rintell speaks with Erica, who is living with congenital adrenal hyperplasia (CAH). Erica describes what it has been like to live with CAH and how she decided to manage her condition and live life on her own terms. With humor and honesty, she explains how she’s gone from being a rebellious child to a leader and advocate in the CAH community. Kamal Bharucha, vice president of clinical development at BridgeBio’s affiliate, Adrenas, joins the conversation to provide an overview of the genetic disease and explain how it is diagnosed and how it impacts the body.
Folgen-ID: 1000568294193
GUID: onrarebridgebio.podbean.com/0f3027a3-db29-38d3-84e1-0819791be8a6
Erscheinungs­datum: 30.6.2022, 17:26:14

Beschreibung

Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.

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